Salman Namah » thalassemia http://blog.skdev.net Random enough to be declared weird. Thu, 01 Oct 2009 23:53:22 +0000 en hourly 1 http://wordpress.org/?v=3.0.3 Pakistan to require premarital blood screening http://blog.skdev.net/2009/02/12/pakistan-to-require-premarital-blood-screening/ http://blog.skdev.net/2009/02/12/pakistan-to-require-premarital-blood-screening/#comments Thu, 12 Feb 2009 05:52:48 +0000 Salman http://blog.skdev.net/?p=585
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    • ]]>     * Draft of law suggests Rs 50,000-100,000 fine, 6 month-one year jail for violators
    By Afnan Khan

    LAHORE: The National Assembly may soon introduce legislation regarding pre-marital blood screening to control the spread of HIV/AIDS, Thalassemia, Hepatitis and other diseases that are transmitted through genetic abnormalities; blood transmission; and sexual relations, sources within the National Assembly said on Tuesday.

    They said the government would impose stern punishment to enforce the law, which would be binding on every Pakistani couple. The punishments would range from a fine of Rs 50,000 to Rs 100,000; six months to a year’s imprisonment; or both. Parliament is also planning on adding a provision to the law to collect the medical history of all Pakistanis deported from foreign countries, especially the Middle East, upon their arrival at airports. The sources said this was necessary as many people are deported from Middle Eastern countries after being found positive for HIV, hepatitis C, etc. Such people rarely inform the government or their families of these conditions to escape stigma and can thus spread the infections, they added.

    The parliamentary sources said the law would be implemented through the thousands of basic health units (BHUs) functioning throughout the country. They said the officials working in these BHUs to keep a check on people violating the law.

    The Standing Committee for Health in the National Assembly is due to meet today (Wednesday) to discuss the final timetable for placement of the bill before parliament and conduct a final debate on its pros and cons. According to committee Chairman Yasmeen Rehman, they would also discuss the issue of spurious drugs; shortage of life-saving medicine; and the high prices of medicines being sold by multinational companies.

    She told Daily Times the committee had already drawn up the outline and major clauses of pre-marital blood screening law. She said passage of this law would ensure the safety of future generations from several deadly diseases.

    Source: Daily Times

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    ]]>     http://blog.skdev.net/2009/02/12/pakistan-to-require-premarital-blood-screening/feed/ 0     Fatimid Foundation’s Blood Donor Form http://blog.skdev.net/2009/01/22/blood-donor-form/ http://blog.skdev.net/2009/01/22/blood-donor-form/#comments Thu, 22 Jan 2009 20:22:12 +0000 Salman http://blog.skdev.net/?p=415
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    • ]]>     Few days ago when I asked one of my friends why he didn’t come to our blood camp he said because he (and his friends) don’t trust Fatimid.

    He told me that Fatimid Foundation arranges a blood camp at their university regularly. He and all his friends used to donate there. But at one occasion one of the colleagues sister was sick and needed blood so they visited Fatimid showed there donation receipts and asked for a bag of blood. But Fatimid Foundation refused and said they can’t give them blood.

    Well so long story short they don’t trust Fatimid and they cannot donate blood for Fatimid Foundation.

    I was a little busy at that time so I couldn’t respond but I did say that they have to fulfill their patients requirement and they have stopped new patient registrations just because they were not getting enough blood for patients then how will they give blood to others? It’s not a blood camp blood bank after all.

    Anyways I found this written on Fatimid Foundation’s Blood Donor form which they require you to fill and SIGN before you donate at any of there camp, even it’s a road-side camp, it says “DONOR’S CONSENT – I want to donate blood voluntarily for the patients of Fatimid Foundation, & will not be entitled to claim any exchange for my donation.”

    image

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    ]]> http://blog.skdev.net/2009/01/22/blood-donor-form/feed/ 3 Thank you Blood Donors :) http://blog.skdev.net/2009/01/22/thank-you-blood-donors/ http://blog.skdev.net/2009/01/22/thank-you-blood-donors/#comments Thu, 22 Jan 2009 18:19:59 +0000 Salman http://blog.skdev.net/?p=412
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    • ]]>     To all friends of F.A.i.T.h (Fight Against Thalassemia) Foundation:

    We’d like to thank everyone – donors, volunteers, recruiters – who helped with our blood drive.

    Unfortunately, we fell 51 pints short of our goal of 100 pints. However, the 49 pints of blood we did collect will help patients who need them. Although we didn’t reach our goal, we had 50% of first-time donors, and they usually become regular donors. And we’re confident that at the next drive, we’ll not only meet but exceed our drive goal. Please feel free to pass on any comments about the donation process to Salman Mehmood (03323080461).

    In the end I am including our donors list here, maybe it will motivate others to donate blood next time :)

    1. Saleem Sheikh
    2. Mutee-Ur-Rehman
    3. Abdul Haseeb
    4. Abdul Hameed Kath
    5. Mrs. Sehrish
    6. Mairaj Bostan
    7. Navara Afridi Malik Meer
    8. Rameez Abbas
    9. Muneeb Khaliq
    10. Yasir Aslam
    11. Noman Rafiq
    12. Waqar Ibrahim
    13. Yaseen Munshi
    14. Khurram A. Hameed
    15. Qasim Qarar
    16. Talha Khan
    17. Mustufa Razzak
    18. Roshan Allah Bux
    19. Faizan Manzoor Ahmed
    20. Umar Farooque
    21. M. Sharique
    22. Saad Saleem
    23. Saad Ahmed
    24. Ali Raza Khan
    25. Waqas Saeed
    26. Fawad Afridi
    27. M. Saleem Mohammad
    28. Mohsin Adhi
    29. Ahmed Rafiq
    30. Umar Khan Sikander
    31. Shoaib Hussain
    32. Abid
    33. A. Basit M. Ilyas
    34. Sohail Ahmed
    35. Salik M. Iqbal
    36. Fahad A. Ghafoor
    37. Marjan Khayal Noor
    38. Faheem A. Qadir
    39. M. Ali M. Shafi
    40. Azhar Afridi
    41. Salma A. Sattar
    42. Muzammil Asghar Ali
    43. Abu Bakar
    44. Muhammad Asif Yahya
    45. Muneer Khan Meera Jan
    46. Sagheer M. Hussain
    47. A. Ghani A. Sattar
    48. Muneer Ahmed
    49. Tariq Baig

    I can’t forget to mention few people who really wanted to donate blood but doctors refused them because they had donated blood in last 2-3 months.

    • Farman Ahmed
    • Major Faisal

    Again, many thanks for helping to boost the blood supply for Thalassemic Patients.

    Sincerely,
    Salman Mehmood

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    ]]>     http://blog.skdev.net/2009/01/22/thank-you-blood-donors/feed/ 2     Pakistan may enforce mandatory Thalassemia, Hepatitis, HIV tests before marriage. http://blog.skdev.net/2009/01/03/tests-before-marriage/ http://blog.skdev.net/2009/01/03/tests-before-marriage/#comments Sat, 03 Jan 2009 21:05:53 +0000 Salman http://blog.skdev.net/?p=344
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    • ]]>
    express news
    tests before marriage
    Original source: Express News

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    ]]>     http://blog.skdev.net/2009/01/03/tests-before-marriage/feed/ 3     Thalassemia – A Documentary http://blog.skdev.net/2009/01/01/thalassemia-a-documentary/ http://blog.skdev.net/2009/01/01/thalassemia-a-documentary/#comments Thu, 01 Jan 2009 02:27:30 +0000 Salman http://blog.skdev.net/?p=339
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    • ]]>
    ZD YouTube FLV Player

    “This is an edited version of a documentary I produced last month for a local non-profit foundation called the Omair-Sana Welfare Foundation. They deal in the treatment of Thallassaemia..”

    - Originaly Uploaded by Rabia Garib at:

    http://s.current.com/items/88806118/thallassaemia_a_documentary.htm

    The description given on that page is obviously wrong, we know thalassemics who have grand childrens.
    We have seen many married thalassemics with kids here in Karachi too.

    Even in the book which was published 12-13 years ago it says:

    How long can a person with thalassemic major live?
    People sometimes don’t like to ask this question directly, but thalassemics and their parents must often ask themselves.
    It is difficult to give a simple reply, because:
    * It is very hard to know the answer for thalassemics who are well at present.
    * The disease and its implications are changing almost from day to day, because of advances in treatment.

    We have all seen that patients with thalassemia are living longer and longer. Today it is reasonable to think that people with thalassemia major, who have been well treated from the beginning, may well live as long as people without thalassemia. Only time will tell whether this prediction is right, or too optimistic.

    On the other hand, if we want to be pessimistic, it is true that thalassemics live with more risks than others, because of the amount of medical treatment they need. all medical treatments include some risk. But even so, well-treated thalassemic patient at the present day can have an excellent life-expectancy.

    Source: http://thalassemia.com.pk/kb/chapter2.html

    But it is a good video, so anyways Thanks for the great video :]

    -Salman

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    ]]>     http://blog.skdev.net/2009/01/01/thalassemia-a-documentary/feed/ 0     Thalassemia Video http://blog.skdev.net/2008/12/19/thal-vid/ http://blog.skdev.net/2008/12/19/thal-vid/#comments Fri, 19 Dec 2008 03:35:50 +0000 Salman http://blog.skdev.net/?p=239
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    • ]]>
    ZD YouTube FLV Player

    Click here to download [312 MB]

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    ]]>     http://blog.skdev.net/2008/12/19/thal-vid/feed/ 7     Thalassemia.Com.PK http://blog.skdev.net/2007/05/07/thalassemia/ http://blog.skdev.net/2007/05/07/thalassemia/#comments Mon, 07 May 2007 16:12:25 +0000 Salman http://skdev.wordpress.com/?p=79
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    • ]]>     Home Page Thalassemia, is a genetic blood disorder, and this website is for a Thalassemia Support Group called FAiTh, Fight Aainst Thalassemia. It features all the information a thalassemic and his/her family should know. From recent Thal-Events, to News, and Research Material.. everything is available there for free..

    Thalassemia.Com.PK is a pretty static site and since it doesn’t offer any interaction or useful services it never looks like active, but we are working on a few stuff that will surely make it a handy and useful site for visitors from Pakistan at least.. I really love it’s design because I created it from top to bottom, it was my first and maybe last creation that is completely mine..! (except for the two images used in the header and few icons) Apart from the design, the complete website is built using PHP and mySql, it has lots of different scripts and alot more are under construction, I work on them in my leisure time.. right now you can find out stuff like research material, ways to support thalassemics and things, articles related to thalassemia and the website. Anyways, I will update this one as soon as we do some work on the website.. click thumbs, view full, the usual yada yada.

    000000;" src="http://blog.skdev.net/wp-content/uploads/2007/05/thal_1.thumbnail.jpg" border="0" alt="Home Page" /> 000000;" src="http://blog.skdev.net/wp-content/uploads/2007/05/thal_2.thumbnail.jpg" border="0" alt="Research Material" /> 000000;" src="http://blog.skdev.net/wp-content/uploads/2007/05/thal_3.thumbnail.jpg" border="0" alt="Support Us Page" /> 000000;" src="http://blog.skdev.net/wp-content/uploads/2007/05/thal_4.thumbnail.jpg" border="0" alt="Treatment Page" />

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